I’m a 56year old married woman with 2 kids. I am nuts on animals and wildlife.
So I’m 56, mind sometimes like a 28 year old and body that behaves like its in its 80s at times. I’m classified as disabled, however even after 24 years I don’t or rather accept I am.
I have many illnesses, some that without medication I would not be here, others I have that due to having autoimmune diseases means that I can be ok one minute and then next be in not such a good way. How do I deal with it? Truth is, I don’t. I get in a temper with it all, I get frustrated, the brain wants to do so much, but the body doesn’t want to comply. So what are my illnesses, well I have too many. The ones I have that I can remember are:-
❏ sjogrens
❏ true pernicious anemia
❏ ME / CFS
❏ fibromyalgia
❏ polymyalgua
❏ morgellons
❏ Reynauds
❏ giant cell arteris
❏ osteoporosis
❏ osteoarthritis
❏ arthritis
❏ rheumatoid arthritis
❏ optic neuritis (ms)
❏ endometriosis
❏ polycystic ovaries
❏ migraines
❏ Ms overlap sjigrens overlap me overlap migraine
❏ under active thyroid
❏ chondriotis
❏ carpal tunnel syndrome
❏ SLE lupus
❏ Trigeminal neuralgia
❏ Tinnitus
Obviously I have some flare ups and I’m currently going through a long one, however I do believe that I will get better. We have a tendency to believe all we are told, but I never have, I always have to defy and to find out and prove wrong and have done this on a few occasions.
I also look out for new therapies and not keen on conventional medicines. To me most conventional medicines are a plaster not a cure. They have their place, but I’ve gone from having 34 tablets a day to just thyroxine, folic acid and 1 gabapentin a day. I have Hydrocoxabalim injections every two weeks which I inject myself.
I now no longer sleep virtually 18 hours a day, I now have a clearer head, I’m able to do my modelmaking, and painting miniature buildings again. I hope you will come with me on my journey, You won’t agree with everything I write or do, that’s what’s so great about life, we are all different and that’s how we learn. I hope some of the things I write will help you or someone you know. On other posts you may find you want to skip it.
If you’ve read down to this far, thank you for taking the time and effort to read my blog.
Carol xxx
For tonight, I say goodnight and hope you sleep well or if on the other side of the world enjoy your day.
Never give up